This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

We’re taking Eli to the hospital today at 10 a.m. for his second surgery to correct a bowel obstruction he had at birth.
That means the ends of his little guts, which are poking out of his body, will be put together within him. He should be in the hospital for five or six days.
I have a lot of faith in Dr. Tuggle, Jesus mechanic of baby guts. Also, my sister just sent a text. She’s a nurse and said the same exact procedure yesterday on a 1 month old went really well, even as that baby was a lot sicker than little man. All these things make me feel good and hopeful. This surgery, Tuggle told me a few weeks back, is less distressing and serious than his first surgery. Eli will be in the hospital for, hopefully, five or six days, instead of 25.
During his first surgery, doctors had to figure out why bud’s gut was swollen to such an alarming level. Mark and I hit stress levels we’d never experienced. The whole ordeal felt like a nightmare. We’d had no idea that anything was wrong during my deceptively perfect pregnancy. Then we found out Eli has a chronic, fatal disease – cystic fibrosis.
Things have calmed way, way down.
Despite his troubles, little buddy is such a gift, and we’re full of hope for a great future for him and our family.
Laila is so sweet to him. She hugs him, pats his head and calls him her best friend.
We told her he’s got to go back to the doctor.
“I want Eli at home,” she said, furrowing her brow in a 2-year-old’s version of protest.
So do we, but he’ll be home soon.
Wish us luck.


8 thoughts on “Surgery today

  1. I am positive everything will go well today for Eli. Thinking of you guys.


  2. Aunt Cheryl and Uncle Ronnie says:

    We’re right here, thinking of you all. Praying for a successful outcone that we know Dr. Tuggle is going to produce. Try not to worry ( I say this knowing how impossible that is). Love you all. Keep us posted. Aunt Cheryl


  3. It’s scary to send them back, even when you’re confident in the docs and know it will be OK and it’s for the best. Thinking of you!


  4. Angela says:

    We’re thinking about all of you!


  5. Laura Wetzel says:

    Eli is my hero….


  6. Pam says:

    Julianna, there’s a beautiful teenage girl in our dance studio who I just learned has cystic fibrosis. She’s an amazing dancer and one would have no idea she carries that history. She is ill upon occasion, but I think as a whole she’s living a healthy, happy life with great hopes for the future. Praying for the same for your Eli.


    1. j&m says:

      Thx! That is good to know 🙂


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