This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

It’s cystic fibrosis awareness month.

Question: Should we as parents pump the breaks on the ‘fighter’ language?

I know I’ve called Eli a fighter many times, throwing the term out there without giving it a second thought.

He uses a vest twice a day when well, takes a whole bunch of pills, and is so conscientious about keeping crud out of his lungs he asked if he should wear a mask while we gardened. No, I did not make him, but I keep him away from piles of wet leaves as well as potting soil…because…pseudomonasb. cepia.…it’s just waiting in the wings to frack with my son’s lungs.

We are wrasslin’ with a life-threatening illness for which there is no cure all the time— even whilst gardening!

But, by saying fighter, am I implying that, when he becomes sicker, he didn’t fight hard enough? Which…would be REALLY shitty of me, his mom, to imply.

I wonder what older CFers think. If there are any who stream on in here, perhaps you could weigh in.

I’m going to pump the breaks on the fighter talk, though, no matter how tempting it is during cystic fibrosis awareness month and all the time every single day to call Eli a ‘fighter.’ Or even better, a ‘little fighter.

Right, I’ve obviously become addicted to the term fighter. And the only cure is to SAY IT MORE.


must…resist…fighter…language….DONE. OK that was really hard. I mean REALLY HARD.

Because he’s soo cuuuuuute when he *don’t say it* when he … um… staves off his very serious illness with an intense daily regimen of physio and pills.

…. GAH!






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