This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

Here’s the short version of this story: We went to Boston and received from Vertex the equivalent of a corporate pat on the head. If you choose to read on, I’ll provide some details. Details Eli and mom traveled to Boston, lugging an over-sized carry-on that contained a machine called ‘The Vest,’ a backpack full …

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Nine months ago we got a new nebulizer that was supposed to cut Eli’s breathing treatment time down. Right now he inhales a medicine called Pulmozyme once a day to bust up some funky stuff his lungs with some science. Pulmozyme is supposed to reduce lung infections by about a third. The PARI eRapid, straight …

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Bedtime takes up so much of our lives, I don’t know why I haven’t written about it before. Most likely it’s because I collapse into a heap afterward. Below are the three books 3-year-old Eli picked out to read tonight before holding me hostage for an additional 40+ minutes of spoken stories and songs. ‘Tis …

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Taking trips together to make good memories as often as we can is a maje. priority. That’s why I’m opening the books on our travels with this post. If a buncha knuckleheads like us can spring it, maybe all the knuckleheads out there can take a decent trip, too.