This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

“MOMMY LOOK!” “Nice building, Eli! What is it!” “JAIL!” “Oh yes, Oklahoma County jail! The orange and black, I see it now! Why…jail?” “I SEE IT IN THE CAR EVERY DAY MOMMY” “Painting another one, are you?” “MOMMY GET THE TAPE!” “And another one?” “MOMMY HANG IT UP!” “Want to paint another building?” “NO I …

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It’s Monday, Aug. 28. Just getting caught up? Here is the news you can use: WTF is happening in the world I went into hibernation mode this weekend. I missed a lot, like: Hurricane Harvey unleashes on Houston Catastrophic flooding is expected through Wednesday Surreal drone footage When disaster strikes, con artists move in Don’t …

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Here’s the short version of this story: We went to Boston and received from Vertex the equivalent of a corporate pat on the head. If you choose to read on, I’ll provide some details. Details Eli and mom traveled to Boston, lugging an over-sized carry-on that contained a machine called ‘The Vest,’ a backpack full …

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Nine months ago we got a new nebulizer that was supposed to cut Eli’s breathing treatment time down. Right now he inhales a medicine called Pulmozyme once a day to bust up some funky stuff his lungs with some science. Pulmozyme is supposed to reduce lung infections by about a third. The PARI eRapid, straight …

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