This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

I first learned about the the post-mortem, in the way the term applies to being better next time around, not doing an autopsy, while working a temp job at an academic hospital in downtown Chicago. When someone dies, there is apparently this big conference. At my hospital they called it M&M, which is a creepily …

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I tried really hard to be pathetic. I poured a glass of wine that was more like 1/3 of the bottle. I got under the thickest, warmest blanket we own in bed and called my sister to cry. Not my proudest moment, perhaps, but every human has license┬áto be ridiculous now and again. What set …

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Any cold Eli catches can flare up the gunky stuff his lungs hold. It is called a “CF exacerbation,” which is, basically, a bacteria party in Eli’s lungs. That is what happened in September, and then October, and again, potentially, in November. We’ve reached 60 days of hacking and counting after three rounds of antibiotics. …

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Nine months ago we got a new nebulizer that was supposed to cut Eli’s breathing treatment time down. Right now he inhales a medicine called Pulmozyme once a day to bust up some funky stuff his lungs with some science. Pulmozyme is supposed to reduce lung infections by about a third. The PARI eRapid, straight …

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Eli earned a new nickname this week: Boss. He did the best he could to boss everyone in his world, everyone trying to mess with him. He is 38 pounds of piss and vinegar. He’s a boss. Want to take the piss out of him? (Literally)? Naw, he ain’t havin it. Need a drop of …

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It’s hard to believe, but Eli is 2 years and 7 months old this month. Mark took him to his latest quarterly visit with the cystic fibrosis clinic. This has been the case for the┬álast few visits due to my work schedule, thus, giving clinic staff a break from the crazy blogger who takes way …

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