The Cystic Fibrosis Lifestyle Foundation will pay up to $1,000 for gym memberships and lessons for a CFer and supporter ($500 per CFer)

I went on a walk today at lunch.

It included 40 device-free minutes. My mind wandered to exercise. Not my own efforts (or lack thereof in recent weeks) — my son’s.

I found out about the Cystic Fibrosis Lifestyle Foundation via a contact on @thisiseli, our Twitter handle.

Even better, I found this foundation will pay up to $500 for gym membership or lessons for a CFer, and up to $1,000 for a CFer and activity partner.

The organization pays directly to the entity providing the service.

Yeah, I did it. It was me.
Yeah, I did it. It was me.

Every little bit helps. A $500 grant would cover my family’s Y membership. #nice. I’ve been meaning to get Eli back into the pool. With a stronger diaper. Or a water diaper plus plastic diaper. Because, yeah, my kid poo’d in the pool the last time we went for a family Y swim. Eli’s water diaper didn’t really…hold it all in. We’re those people.

Uhhh….Changing subjects now:

I’m going to apply for a grant. Those with CFers/ who have CF — have you? How did it work?

Let me know how it goes. Last year, the foundation ran out of grant money in November. This year, its donors have given more, my Twitter insider told me.

I still need to make an appointment for Eli to see an exercise physiologist, come to think of it.

Here is a paper on the role of exercise in cystic fibrosis, for those who would like to learn more.

Separate but related subject: Who has forgotten about their resolutions already?

I made no resolutions but managed to exercise through the holidays. February was a wash. I’m hoping better weather will be my key to moving and sweating more. It’s great for the body and the mind. Or I’ll just eat this cookie and take a nap. How do you stay motivated? noms zzzzzzzzzzzzzzzzzzzzzzz

xo

A year ago I trained for the OKC marathon, then didn't run it. I did get a swell overuse injury that's prevented me from doing any distance running since. WAAAA
A year ago I trained for the OKC marathon, then didn’t run it. I did get a swell overuse injury that’s prevented me from doing any distance running since. After running 50 yards and quitting at a Starbucks, my husband picked me up. We hiked instead that morning, in a nature preserve. Well, I limp-hiked. WAAAA #neveragain
Advertisements

Feeling better

Quick note: Eli’s 0-to-crud-in-60-second cough has improved a lot.

Daily, he is on 1.5 hours of vest, an antibiotic and breathing treatments of Albuterol plus our new treatment, Pulmozyme for a cruddy cough that appeared out of nowhere. He doesn’t have a consistent cough any more, but he coughs during his treatments. That’s good because it means his lung juices are flowing, expelling troublesome gunk.

Little man turns off his compressor and says “All done!” before he’s done. He’s just about had it with all this stuff.

When we turn it back on, he says, “Don’t do that!”

It breaks mommy’s heart a little.

It makes me smile, too, though, my little buddy using words to exert a little control over his tot life.

“Don’t do that!”

He says it with such determination and confidence. Nice work, buddy!
I20141212-062703.jpg

For a few tense moments, Eli couldn’t breathe: here’s why

Our world went topsy turvy yesterday when my nanny walked into my son’s room to find him on his belly, neck flexed and thick and craned toward the ceiling, face beet red.

He wasn’t breathing. She performed CPR. When that didn’t seem to do much, she held him upright and gave him big pats on the back.

Eli seemed to be choking on something, she said. Once she got him upright, he stopped choking and started sucking in labored, wheezy, shallow breaths.

Continue reading For a few tense moments, Eli couldn’t breathe: here’s why

Auntie Carrie’s corner: 6 healthy, tasty, robust recipes for toddlers with cystic fibrosis

Aunt Carrie just stepped up her game.

Aunt Carrie, stepping up her auntie game. Fierce.
Aunt Carrie, stepping up her auntie game. Fierce.

Continue reading Auntie Carrie’s corner: 6 healthy, tasty, robust recipes for toddlers with cystic fibrosis

Daycare wishes and lung infection nightmares!

I get excited about the strangest things these days.

Continue reading Daycare wishes and lung infection nightmares!

Antibiotic

After yesterday’s 1300+ word catharsis, I’ll just say this: Eli goes on an antibiotic today. His cough isn’t going away.

Hey mommy, you crazy
Hey mommy, you crazy

A little tot cough (can stab you in the heart)

We’ve all been sick and run down in the past week or so. – one after another. First me, then Eli, then Laila, and now Mark! Woo!

Sore throats, cough, fever.

Is it strep?

Continue reading A little tot cough (can stab you in the heart)

Breakfast at Eli’s

My 1-year-old needs 200 percent more calories than the average tot. Here’s what breakfast looks like:

Continue reading Breakfast at Eli’s

3 nice notes and a few reasons to keep keeping on.

Good morning!

Every once in a while I get too busy to write too much. Thus, I ask myself: “What’s the point and why am I doing this and should I continue or give it up?”

'Cause srsly, I'm tired.
‘Cause srsly, I’m tired.

Continue reading 3 nice notes and a few reasons to keep keeping on.