This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

Hello. This giving Tuesday, I am asking for your help on one thing on behalf of my son Eli, who has a fatal disease called cystic fibrosis. It’s not cash. It’s time for a pair of phone calls. For giving Tuesday, please make a phone call to your senators on behalf of medically complex kids …

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Eli earned a new nickname this week: Boss. He did the best he could to boss everyone in his world, everyone trying to mess with him. He is 38 pounds of piss and vinegar. He’s a boss. Want to take the piss out of him? (Literally)? Naw, he ain’t havin it. Need a drop of …

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Panic strikes as I remember my make-up is in my gym bag at work. There is knock on the door. It is a TV reporter and cameraman. My son is eating cereal in his diaper. The TV reporter and cameraman enter. Eli sees them, throws himself on ground and refuses to wear pants. So began our little dispatch …

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Sometimes you just gotta write through the fog of despair to find clarity. That’s what I did Saturday, starting at 5:30 a.m., before my kids were up, so I could let go of a crummy week and have a fun Halloween with the family. I discovered that when you put it out there, solutions float your way. …

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Oh hey yah, it’s been a while since I wrote about cash. Let’s see…During the month of September we were like a germ bag circus. The month of October, we had an opportunity to move away from slummy the slumlord, owner of giant dread tree in backyard he refuses to cut down. And why clean …

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