This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

Hello. This giving Tuesday, I am asking for your help on one thing on behalf of my son Eli, who has a fatal disease called cystic fibrosis. It’s not cash. It’s time for a pair of phone calls. For giving Tuesday, please make a phone call to your senators on behalf of medically complex kids …

Continue reading

Thirty pounds of rage can flip chairs, shatter sound sound barriers and thrash at your heart, one so full of love for this little bruiser. Seems at nearly 3 Eli has decided he has a lot to say about the hours of treatments and physical therapy we put him through each week to keep him healthy. He …

Continue reading