This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

Sometimes you just gotta write through the fog of despair to find clarity. That’s what I did Saturday, starting at 5:30 a.m., before my kids were up, so I could let go of a crummy week and have a fun Halloween with the family. I discovered that when you put it out there, solutions float your way. …

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Thirty pounds of rage can flip chairs, shatter sound sound barriers and thrash at your heart, one so full of love for this little bruiser. Seems at nearly 3 Eli has decided he has a lot to say about the hours of treatments and physical therapy we put him through each week to keep him healthy. He …

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It’s hard to believe, but Eli is 2 years and 7 months old this month. Mark took him to his latest quarterly visit with the cystic fibrosis clinic. This has been the case for the last few visits due to my work schedule, thus, giving clinic staff a break from the crazy blogger who takes way …

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I love restraining my screaming toddler so he takes his medicine. I love the way he moves his feet because my thigh has his legs pinned down, and it’s all he can do to protest. I love the way he screams and shakes his head “no” again and again and again. I love the way …

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I went on a walk today at lunch. It included 40 device-free minutes. My mind wandered to exercise. Not my own efforts (or lack thereof in recent weeks) — my son’s. I found out about the Cystic Fibrosis Lifestyle Foundation via a contact on @thisiseli, our Twitter handle. Even better, I found this foundation will …

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