This is Eli

A blog about Eli. A blog about survival – and by that, I mean life!

Bedtime takes up so much of our lives, I don’t know why I haven’t written about it before. Most likely it’s because I collapse into a heap afterward. Below are the three books 3-year-old Eli picked out to read tonight before holding me hostage for an additional 40+ minutes of spoken stories and songs. ‘Tis …

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Sometimes you just gotta write through the fog of despair to find clarity. That’s what I did Saturday, starting at 5:30 a.m., before my kids were up, so I could let go of a crummy week and have a fun Halloween with the family. I discovered that when you put it out there, solutions float your way. …

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Thirty pounds of rage can flip chairs, shatter sound sound barriers and thrash at your heart, one so full of love for this little bruiser. Seems at nearly 3 Eli has decided he has a lot to say about the hours of treatments and physical therapy we put him through each week to keep him healthy. He …

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The news at Eli’s latest CF clinic appointment that studies have shown Eli’s lung function will likely start to differentiate from that of his non-cystic fibrosis friends at 2 got me kinda down, then it got me thinking. Exercise starts now, lil buddy! Coach Mommy’s on the case.

Today marked Eli’s appointment at the cystic fibrosis clinic. He sees his pulmonologist every three months. Eli has developed strong opinions on just about everything. He says just a few words these days, but I’ll let the pictures show what one little boy had to say about his experience at the doctor’s office:

Last week I gave Laila a back-to-school budget of $150 and vowed not to exceed it. That’s harder than it sounds. Shiny, pretty back-to-school things are everywhere. A few increments of $20 or $30 and you’ve blown the budget on stuff that’s probably not going to fit in six months to a year. I realized …

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He’s raging against the machine today. This is how we feel about our vest this morning #cysticfibrois https://t.co/aHs4mns18H — thisiseli (@hithisiseli) July 27, 2014 And this…#cf #cysticfibrois https://t.co/iybrVaDrWf — thisiseli (@hithisiseli) July 27, 2014 This… https://t.co/TZd6Ld4lUB — thisiseli (@hithisiseli) July 27, 2014 Now he lets me know how he feels about “That’s Not My Kitten.” …

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My week of writing about Eli and different games and therapies – physio! – to keep his lungs healthy has come to a close. While I didn’t get to write as many posts on this topic as I would have liked, I got lots different ideas from dipping into this area. I look forward to …

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